Patient Organisation Payments 2019

UK

Name of patient organisation Description of Support Amount
Findacure Sponsorship - Findacure Conference £5,000.00
Findacure Grant - Peer Mentoring Program £5,000.00
Genetic Alliance UK Ltd Grant - 2018 and preparation for RDD 2019 £8,000.00
Genetic Alliance UK Ltd Grant - Industrial Members £11,000.00
Metabolic Support UK Support - Next Generation Project £5,000.00
Metabolic Support UK Grant - Qualitative Research Study £2,500.00
Cambridge Rare Disease Network Sponsorship - Summit 19 £10,000.00
The Haemophilia Society Educational Support £10,905.68
The Haemophilia Society Grant - APPG Project £34,000.00
The Haemophilia Society Grant - Desk Based Research £6,000.00
The Haemophilia Society Sponsorship - WHD £77.90
The Haemophilia Society Grant - Youth Ambassadors Program £60,000.00
The Haemophilia Society Educational Support £250.00
The Haemophilia Society Donation for WHD £54.00
The Haemophilia Society Grant - Haemophilia Development £6,000.00
The Haemophilia Society Educational Support £250.00
The Haemophilia Society Grant - Attendance cost to WFH £12,500.00
Histiocytosis UK Sponsorship - UK Forum £2,000.00
Haemophilia Northern Ireland Sponsorship - Patient Meeting £1,227.25
Haemophilia Scotland Sponsorship - Patient Pairing Project £10,404.05
Metabolic Support UK Sponsorship - Attendance BMIDG £70.00
AKU Society Grant - Passport Medical Booklets £1,200.00
The Specialised Healthcare Alliance Sponsorship - Membership 2020 £14,500.00

 

IRELAND

 

Name of patient organisation Description of Support Amount
Irish Haemophilia Society Ltd Donation EUR 990.00
Irish Haemophilia Society Ltd Sponsorship - Program 2019 EUR 15,000.00
Irish Haemophilia Society Ltd Sponsorship - Third Level College Educational Grant EUR 42,000.00
Irish Haemophilia Society Ltd Sponsorship - I.H.S Corporate Giving Program 2019
Sponsorship - Delegates to attend AGM
EUR 16,000.00
Irish Haemophilia Society Ltd Grant - Funding of Patient Accommodation EUR 50,000.00

NP-11697
Date of preparation: June 2020

Patient Organisation Payments 2019

UK

Name of patient organisation Description of Support Amount
Findacure Sponsorship - Findacure Conference £5,000.00
Findacure Grant - Peer Mentoring Program £5,000.00
Genetic Alliance UK Ltd Grant - 2018 and preparation for RDD 2019 £8,000.00
Genetic Alliance UK Ltd Grant - Industrial Members £11,000.00
Metabolic Support UK Support - Next Generation Project £5,000.00
Metabolic Support UK Grant - Qualitative Research Study £2,500.00
Cambridge Rare Disease Network Sponsorship - Summit 19 £10,000.00
The Haemophilia Society Educational Support £10,905.68
The Haemophilia Society Grant - APPG Project £34,000.00
The Haemophilia Society Grant - Desk Based Research £6,000.00
The Haemophilia Society Sponsorship - WHD £77.90
The Haemophilia Society Grant - Youth Ambassadors Program £60,000.00
The Haemophilia Society Educational Support £250.00
The Haemophilia Society Donation for WHD £54.00
The Haemophilia Society Grant - Haemophilia Development £6,000.00
The Haemophilia Society Educational Support £250.00
The Haemophilia Society Grant - Attendance cost to WFH £12,500.00
Histiocytosis UK Sponsorship - UK Forum £2,000.00
Haemophilia Northern Ireland Sponsorship - Patient Meeting £1,227.25
Haemophilia Scotland Sponsorship - Patient Pairing Project £10,404.05
Metabolic Support UK Sponsorship - Attendance BMIDG £70.00
AKU Society Grant - Passport Medical Booklets £1,200.00
The Specialised Healthcare Alliance Sponsorship - Membership 2020 £14,500.00

 

IRELAND

 

Name of patient organisation Description of Support Amount
Irish Haemophilia Society Ltd Donation EUR 990.00
Irish Haemophilia Society Ltd Sponsorship - Program 2019 EUR 15,000.00
Irish Haemophilia Society Ltd Sponsorship - Third Level College Educational Grant EUR 42,000.00
Irish Haemophilia Society Ltd Sponsorship - I.H.S Corporate Giving Program 2019
Sponsorship - Delegates to attend AGM
EUR 16,000.00
Irish Haemophilia Society Ltd Grant - Funding of Patient Accommodation EUR 50,000.00

NP-11697
Date of preparation: June 2020