Patient Organisation Payments 2020

Patient Organisation Payments 2020

UK

Name of patient organisation Description of Support Amount
Cambridge Rare Disease Network Sponsorship-Rare Fest Conference £6,000.00
Findacure Grant - Peer Mentoring Program £10,000.00
Findacure Sponsorship-  Annual Drug Repurposing Conference £5,000.00
Genetic Alliance UK Ltd Grant - Industrial Members £12,000.00
Genetic Alliance UK Ltd Sponsorship - Rare Disease Day £8,000.00
Genetic Alliance UK Ltd Grant - Rare Film Festival £1,000.00
Haemophilia Scotland Speakers Fee - Dan Farthing Sykes £125.00
Haemophilia Scotland Donation - Big Give Funding Campaign £2,000.00
Histiocytosis UK Donation - Staff climbing Scafell Pike  £1,613.00
Intensive Care Society Donation - Q1  Program £250.00
The Alkaptonuria Society Ltd Donation - General unrestricted funds  £2,000.00
The Haemophilia Society Sponsorship - Youth Ambassadors Program £60,000.00
The Haemophilia Society Sponsorship - Support ASH £12,500.00
The Haemophilia Society Grant - Marketing Buddy Lunch £12,000.00
The Haemophilia Society Speaker Agreement - Liz Carol £200.00
The Platelet Mission Sponsorship - Mervyn Morgan to attend workshop  £300.00

IRELAND

Name of patient organisation Description of Support Amount
IPPOSI Grant - 2020 Membership  EUR 8,500.00
Irish Haemophilia Society Sponsorship - Giving Program  EUR 15,000.00
Irish Haemophilia Society Grant - Probe Study EUR 60,000.00

NP-17256
Date of preparation: June 2021